It Took 4 Docotrs And 30+ Exams To Diagnose My Uncommon Illness

Earlier than getting my prognosis, it was actually scary, as a result of I at all times thought every breath may very well be my final and I’d die in a couple of years as a result of I used to be shedding lung operate quickly. 

Thankfully, after my prognosis, I used to be related with an awesome pulmonary specialist who assured me my situation was treatable. This was the primary sense of hope I had in virtually a 12 months, since my well being journey started. 

I used to be instantly placed on immunosuppressive medication and despatched to pulmonary rehab—it was particularly essential to keep watch over my lung operate as a result of if I’d misplaced even a pair extra percentages, I must be on oxygen full-time.

The pulmonary rehab helped me to not solely be taught extra concerning the illness but additionally acquire a greater consciousness of my physique. The docs have been making an attempt to do all the things they might to maintain my lungs on the level they have been. Whereas they’ll by no means get better, we have been making an attempt to maintain issues from getting worse—which has confirmed to achieve success through the years. 

It’s been practically a decade since my preliminary prognosis. After sticking to the right workouts and supporting my lungs, I’ve now been capable of keep off my remedy for 3 years with out decline. For that, I’m completely grateful. 

I’ve additionally been capable of incorporate extra train into my routine to assist assist my complete physique well being. Since my illness causes weak point in my muscle tissue, I’ve to go to the gymnasium to construct up power. I additionally push myself to do a sure strolling routine and transfer my physique—I strive actually laborious to do what I can to remain energetic.